The Northwest Tribal Elders project fosters the Northwest tribes ensuring our tribal elders receive satisfactory health and wellness services and resources. We are currently funded on a cooperative agreement that focuses focus on capacity building, program, and policy development, mobilizing partnerships, providing health education and promotion, and training and technical assistance to our member tribes in areas that will enhance community development and health equity.
CDC collaborated with tribal leaders across the nation to develop and implement the Healthy Brain Initiative and the Road Map for Indian Country (RMIC). This is a first-ever public health guide focused on dementia in AI/AN communities. NPAIHB is the first AI/AN CDC funded collaborative grant. The HBI/RMIC is a community engagement tool that can empower tribal communities to:
Dementia is the loss of cognitive functioning — thinking, remembering, and reasoning — to such an extent that it interferes with a person’s daily life and activities. Some people with dementia cannot control their emotions, and their personalities may change. Dementia ranges in severity from the mildest stage, when it is just beginning to affect a person’s functioning, to the most severe stage, when the person must depend completely on others for basic activities of living.
What Is Dementia? Symptoms, Types, and Diagnosis | National Institute on Aging (nih.gov)
Are Native American and Alaska Natives (AI/AN) impacted by Dementia? Alzheimer’s Association reported in a report that 1 in 3 AIAN will develop ADRD
Mild cognitive impairment (MCI) is an early stage of memory loss or other cognitive ability loss (such as language or visual/spatial perception) in individuals who maintain the ability to independently perform most activities of daily living. Click here to read more.
Alzheimer’s is a type of dementia that affects memory, thinking and behavior. Symptoms eventually grow severe enough to interfere with daily tasks. Alzheimer’s is the most common cause of dementia, a general term for memory loss and other cognitive abilities serious enough to interfere with daily life. Alzheimer’s disease accounts for 60-80% of dementia cases. Click here to read more.
Recipient from the Department of Health and Human Services Centers for Disease Control and Prevention (CDC) cooperative agreement awards for the Healthy Brain Initiative (HBI): BOLD Public Health Programs to Address Alzheimer’s Disease and Related Dementias (AD/RD) in Indian Country. The project will be titled The Northwest Tribal Elder’s Project. (see links)
CDC collaborated with tribal leaders across the nation to develop and implement the Healthy Brain Initiative and the Road Map for Indian Country (RMIC). This is a first-ever public health guide focused on dementia in AI/AN communities. NPAIHB is the first AI/AN CDC funded collaborative grant. The HBI/RMIC is a community engagement tool that can empower tribal communities to:
Chandra Wilson, MSW (The Klamath Tribes)
Wyatt Miner (Cheyenne River Sioux)
On July 11-13, 2023 over 30 Northwest Tribes gathered at the Swinomish Casino Resort, in Anacortes, Washington on the Swinomish Reservation home to a community of Coastal Salish People. This was the for the First Annual Northwest Tribal Brain Health and Dementia Summit. For 2 ½ days we gathered together and shared Brain Health and Dementia resources and stories from our Northwest Tribes. The gathering was an opportunity to address the continued gap in the knowledge and awareness about dementias through Tribal communities and learn more about Risk Reduction, Benefits of Early Detection, and Caregiver support and to provide knowledge, resources and awareness of Alzheimer’s Disease and Related Dementias (ADRD) among American Indian and Alaska Natives (AI/AN).
“It is estimated that one in three American Indian and Alaska Native older adults 65 and older may receive a dementia diagnosis over the next 25 years”
(Mayeda, Glymour, Quensenberry, & Whitmer, 2016)
We recognize that this area of healthcare has a limited workforce capacity within our tribes, and that we may face many challenges ahead and with this gathering and collaboration of tribal leaders, health programs, clinical providers and ADRD experts together we addressed Brain Health and Dementia in our tribal communities. The Summit provided presentations that included information, education, and awareness to address brain health and memory/cognitive decline and ADRD. Presentations included: The Alzheimer’s Association, The Healthy Brain Initiatives, Road Map for Indian Country, International Association for Indigenous Aging (IA2), Dementia Friendly AI/AN Communities, Framing, Recognizing, and Responding to Elder Abuse in Indian Country, and additional presentations related to music, memory, and Tribal community ADRD programs. In addition, many of our attendees received their certification of Completion of the Dementia Friendly AI/AN Communities information webinar provided by the IA2 team – working towards becoming a Dementia Friend Champion. Lastly, The Banner Alzheimers Institute’s Native American Outreach Program provided a half-day Caregiver Support Training, going through their Caregiver Support Toolkit.
We ended both Summit days with daily reflections, and listening sessions where we discussed among our relatives’ questions to stimulate conversations not limited to how each tribal community is addressing ADRD and supporting Caregivers – we shared stories, and we celebrated life together with laughter, tears, songs, dances and prayers. We shared about our tribal traditions, and the importance of implementing them into tribal programs – and how many of our tribal programs have been weaving traditional ways into their daily delivery of care. Mostly importantly, we made new relationships and strengthen old ones, and observed in our presence who our Dementia Champions are that we made formation that we are the Northwest Tribal Dementia Network, and that we want to foster our relationships and support one another as we walk this journey to bring awareness and education to our member tribes, one-step at a time, together. We are not alone!
Idaho Department of Health &Wellness – ADRD
Oregon Health Authority Health Promotion and Chronic Disease Prevention
Aging and Disability Resource Connection (ADRC)
Phone: 1-855-673-2372
State Plan on Alzheimer’s Disease and related Dementias – “SPADO”
State of Oregon: SUA – Family Caregiver Program
Family Caregiver Support Program
Director Healthy Aging Initiatives Center for Public Affairs
Tribal Affairs Administrator / Aging & Long-Term Support Administration
Phone: 360-725-3489
Dementia Action Collaborative | DSHS (wa.gov)
Alzheimer’s Disease and Aging | Brain Institute | OHSU
Oregon Center for Aging & Technology (ORCATECH) | OHSU
Memory and Brain Wellness Center (washington.edu)
CDC Alzheimer’s Disease and Healthy Aging Funding
CDC Road Map for Indian Country
Banner Alzheimer’s Institute – Native American Outreach Program
Administration for Community Living – Services for Native Americans (OAA Title VI)
International Association for Indigenous Aging (IA2)
National Indian Council on Aging NICOA
National Indian Health Board – Brain Health for Tribal Nations
National Resource Center on Native American Aging
Savvy Caregiver in Indian Country Training – Dr. J. Neil Henderson (Choctaw of Oklahoma) Professor Emeritus, Dept of Family Medicine & Biobehavioral Health University of Minnesota Medical School
Project ECHO Dementia UW Medicine – Memory & Brain Wellness Center
Project ECHO Oregon ECHO Network – Geriatric Care in an Age-Friendly Health System
TimeSlips Creative Storytelling
Funding source
THIS RESOURCE WAS PRODUCED AND SUPPORTED THROUGH FUNDING BY CENTERS FOR DISEASE CONTROL AND PREVENTION, NATIONAL CENTER FOR CHRONIC DISEASE PREVENTION AND HEALTH PROMOTION PROGRAM GRANT #1NU58DP006923-11-00